Myalgic encephalomyelitis (ME): when the body is permanently exhausted
27. June 2025

Myalgic encephalomyelitis (ME): when the body is permanently exhausted
Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a complex and often misunderstood neurological disorder. People suffering from ME struggle with profound fatigue that does not improve with rest. Other common symptoms include difficulty concentrating (“brain fog”), sleep problems, muscle pain and so-called exercise intolerance – meaning that even mild physical or mental exertion can lead to a massive worsening of symptoms. The exact cause of ME is not yet fully understood. However, many sufferers report an outbreak of the disease following a viral infection or other severe physical exertion.
Living with ME: everyday life and challenges
Everyday life with ME can be extremely limited. Some people are only mildly affected and have limited ability to work or socialize. Others are permanently bedridden and require extensive support in everyday life. It is particularly challenging that ME often remains “invisible” on the outside – which unfortunately still often leads to a lack of understanding in personal and professional environments. Early diagnosis and conscious management of one’s own energy limits (“pacing”) are crucial in order to avoid overload.
Complementary approaches: How toxopheresis could be supportive
Toxopheresis is a complementary approach that is offered in specialized centers, clinics and private practices. This is a blood purification procedure that aims to remove certain pro-inflammatory substances, autoantibodies or toxic molecules from the blood. After treatment, patients report an improvement in their cognitive functions and an easier ability to recover after exertion. Toxopheresis should only be carried out after individual medical clarification and under expert supervision.
What can those affected do?
Even if there is currently no causal therapy, various supportive measures are available. These include individually tailored physiotherapy, behavioral therapy for better coping with the disease, drug treatments for individual symptoms and a targeted diet. It is particularly important to talk to other sufferers – for example via self-help groups – to feel understood and to receive valuable tips for everyday life.
Conclusion
Myalgic encephalomyelitis is a serious disease with many faces. A conscious approach to one’s own limitations, medical support and complementary approaches such as toxopheresis can help to stabilize the quality of life and make small advances possible.
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